Cystic Fibrosis Queensland

Lives unaffected by cystic fibrosis.

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ABN: 97010549667

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Support for members

Physical activities, parking and medical expense subsidies

We provide our members with a $150 subsidy per year for any expense which promotes physical activity, a maximum of $100 a year parking reimbursement and $100 subsidy for medical expenses.

 

Please send us a completed subsidy claim form along with any receipts to verify your claim. These subsidies may be claimed once every calendar year.

 

Click here to download the subsidy claim form.

Email the completed form to services@cfqld.org.au by the first Wednesday in December.

Newly Diagnosed Support

Information is critical when your child is first diagnosed with cystic fibrosis and for the first 12 months of their life. Your hospital will provide you with a prepared Cystic Fibrosis Queensland information pack which also contains our membership form.

Click here to download your copy of the Newly Diagnosed Information for parents.

Boredom Buster Bags

We provide Boredom Buster Bags for children while they are in hospital. Email services@cfqld.org.au to request a bag. Include your child’s age and gender.

 

School support

We respond to referrals from schools requesting assistance with cystic fibrosis related issues. Cystic Fibrosis Queensland uses the CFSmart program to inform teachers who are preparing for the first time to have a child with cystic fibrosis in their class.

Teachers are encouraged to complete the e-learning modules. Each module is worth one professional development point, is free to undertake and takes about 20-30 minutes to complete. The modules and more information on CFSmart can be found here

 

Advocacy

Cystic Fibrosis Queensland is able to provide individual level advocacy with external organisations when a client is not able to achieve their desired outcome.

Hospital airway clearance equipment

Cystic Fibrosis Queensland provides free respiratory equipment to people living with cystic fibrosis who are ineligible for MASS (medical aids subsidy scheme) through the cystic fibrosis hospital clinic physiotherapists. The items purchased by hospitals under this scheme have all been distributed by the physiotherapist to the cystic fibrosis community. Cystic Fibrosis Queensland has a number of airway clearance items in stock for members who are not covered by MASS, please speak to you hospital physiotherapist to obtain a referral for these items. Your physiotherapist will need to complete one of the following forms and forward it to services@cfqld.org.au.

Links to forms:

 

If you have any questions, pleases don’t hesitate to contact 07 3359 8000 or email services@cfqld.org.au.

 

Equipment loans

Cystic Fibrosis Queensland lends travel nebulisers and portable oxygen concentrators to our clients. If you need either of these items please contact 07 3359 8000 or email services@cfqld.org.au.

Grants

 

Cystic Fibrosis Queensland applies for a number of grants throughout the year, please contact services@cfqld.org.au to find out if there are any grants currently available. All grants can be claimed by filling out the subsidy claim form and returning it to services@cfqld.org.au.

Nebulisers

Cystic Fibrosis Queensland applies for grants to provide members with a nebuliser. Before purchasing any items please contact services@cfqld.org.au to find out if there are any grants currently available, or to put your name on a waiting list for the next available nebuliser grant. 

Trampolines

Cystic Fibrosis Queensland applies for grants to provide our young members with a trampoline for physical exercise. Please contact services@cfqld.org.au to find out if there are any grants currently available or to put your name on a waiting list for the next available trampoline grant. 

Accommodation assistance for rural and remote members

Our Accommodation Assistance Program assists members who have cystic fibrosis and who live in rural or remote areas , who are eligible to claim government patient transport assistance, so they can have the support of their immediate family while attending appointments and/or hospital stays in Brisbane.

For more information:

 

Click here to download the form.

 

Email the completed form, along with evidence of your patient transport assistance scheme application, to services@cfqld.org.au by the first Wednesday in December.

 

Please be sure to access your government patient transport assistance schemes first, such as the QLD Patient Travel Subsidy Scheme, the NT Patient Assistance Travel Scheme  or the NSW Isolated Patients Transport and Accommodation Assistance Scheme

 

EPIC Assist

EPIC Assist has been helping people with disability and chronic illness find and maintain work for almost 30 years. The supportive team at EPIC Assist will work with you to find a part time or casual position that accommodates your physical and health needs. 

When you start employment, they remain in touch and continue supporting you as you transition.
 

EPIC Assist not only helps you find employment, but also offers training to help job seekers re-skill for the workforce. EPIC Education Assist delivers nationally recognised courses for people with disability, individuals supporting people with disability, and those entering the disability sector. They also provide workshops to businesses interested in increasing their workplace diversity. EPIC Assist works closely with students to help them attain their qualifications, and go on to bigger and better things. High school students and adults who are completing traineeships, apprenticeships, and accredited courses can access extra study support through their partner organisation, Planning 4 Life.
 

If you need to change employment due to your health or are seeking to return to work, visit epicassist.org or phone 13 EPIC (13 3742) to speak with a consultant.